Privacy Policy

INTRODUCTION

Welcome to the Center for Innovative Dementia Research (CEIDER). Your privacy is our top priority. This Privacy Policy explains the types of personal information we collect, how we use it, and the steps we take to safeguard it.

By accessing our services, you consent to the data practices described in this policy. If you do not agree to any part of this Privacy Policy, you should not use our services.

Changes to This Policy: CEIDER reserves the right to update or change this policy at any time. Any changes will be effective immediately upon posting on our website. Individuals can always request removal of their information from the registry at any time, including if future changes to the privacy policy are not acceptable.

REGARDING THE RESEARCH PARTICIPATION REGISTRY

The Research Participation Registry by CEIDER has been approved by an independent Institutional Review Board (IRB). The IRB-approved Consent Form is available at the top of the registry entry page.

The more information you provide about yourself, the better we can match you with available research opportunities. Information we collect includes personal identifying information, contact information, lifestyle information (optional), and medical information (optional). Registration is always voluntary. We collect this information to match individuals interested in participating in research with IRB-approved researchers conducting studies, with the goal of advancing research in memory, aging, dementia, and Alzheimer’s. Your information is assigned a unique ID to maintain privacy.

The CEIDER Research Participation Registry database is managed by CEIDER in compliance with the Health Insurance Portability and Accountability Act (HIPAA).

CAREBERRY PRODUCT SALES AND MARKETING PRIVACY POLICY

This section of the privacy policy applies to Center for Innovative Dementia Research, LLC (DBA Careberry) and its products and services for people with dementia and their caregivers.

1. Information We Collect
Careberry may collect personal information, including your name, email address, phone number, and other contact details, when you interact with us (such as when you sign up to receive updates or inquire about our products and services).

2. How We Use Your Information
The information collected is used solely for internal purposes, including:

Communicating with you about new products or services.
Providing updates on existing products or services.
Contacting you via email or text messaging with product updates, offers, or information related to your purchases.

3. Information Sharing and Disclosure
We value your privacy. Your personal information will never be shared, sold, rented, or otherwise distributed to any third party outside of CEIDER and Careberry.

4. Data Security
We implement appropriate technical and organizational measures to safeguard your information from unauthorized access, disclosure, or misuse.

5. Your Consent
By providing your contact information, you consent to the collection and use of your information as outlined in this policy, including receiving communications via email and text messaging.

CEIDER DEMENTIA SUPPORT GROUP POLICY

Welcome to the dementia support groups facilitated by CEIDER. This document outlines our policy to ensure a safe, confidential, and constructive environment for all participants. We adhere to the highest standards of privacy and professional practice.

The support groups are intended to provide emotional, educational, and social support for caregivers, families, and friends. These groups are not a substitute for professional medical advice, diagnosis, or treatment.

Eligibility:
(1) Caregivers, family members, and friends of individuals with dementia.
(2) Professionals involved in dementia care or research.

Registration:
Participants may need to complete a registration form before joining the group. Options for anonymous participation (e.g., no camera) may be available.

Confidentiality:
All discussions during support group sessions are confidential. Participant information will not be shared outside the group without explicit consent, except when there is a risk of harm to the participant or others.

Conduct and Etiquette:
Be respectful to other participants and facilitators, use supportive language, and avoid dominating conversations. Non-adherence to proper etiquette may result in removal from the group.

Facilitators:
Support groups are led by qualified facilitators trained in dementia care and group dynamics.

Technology and Virtual Meetings:
For virtual meetings, CEIDER uses secure video conferencing platforms compliant with privacy laws. Participants are responsible for securing their own internet connections.

CEIDER is committed to protecting your privacy. Information gathered in support groups will not be shared with third parties.

CONTACT INFORMATION

For questions or concerns regarding this policy, or to be removed from the registry, please contact us at:
Email: Support@CEIDER.org